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42 U.S. Code § 300mm-4. Clinical Centers of Excellence and Data Centers
(a) In general
(1) Contracts with Clinical Centers of ExcellenceThe WTC Program Administrator shall, subject to subsection (b)(1)(B), enter into contracts with Clinical Centers of Excellence (as defined in subsection (b)(1)(A))—
(A)
for the provision of monitoring and treatment benefits and initial health evaluation benefits under part B;
(B)
for the provision of outreach and retention activities to individuals eligible for such monitoring and treatment benefits, for initial health evaluation benefits, and for followup to individuals who are enrolled in the monitoring program;
(C)
for the provision of counseling for benefits under part B, with respect to WTC-related health conditions, for individuals eligible for such benefits;
(D)
for the provision of counseling for benefits for WTC-related health conditions that may be available under workers’ compensation or other benefit programs for work-related injuries or illnesses, health insurance, disability insurance, or other insurance plans or through public or private social service agencies and assisting eligible individuals in applying for such benefits;
(E)
for the provision of translational and interpretive services for program participants who are not English language proficient; and
(F)
for the collection and reporting of data, including claims data, in accordance with section 300mm–3 of this title.
(2) Contracts with Data Centers
(A) In generalThe WTC Program Administrator shall enter into contracts with one or more Data Centers (as defined in subsection (b)(2))—
(i)
for receiving, analyzing, and reporting to the WTC Program Administrator on data, in accordance with section 300mm–3 of this title, that have been collected and reported to such Data Centers by the corresponding Clinical Centers of Excellence under subsection (b)(1)(B)(iii);
(ii)
for the development of monitoring, initial health evaluation, and treatment protocols, with respect to WTC-related health conditions;
(iii)
for coordinating the outreach and retention activities conducted under paragraph (1)(B) by each corresponding Clinical Center of Excellence;
(iv)
for establishing criteria for the credentialing of medical providers participating in the nationwide network under section 300mm–23 of this title;
(v)
for coordinating and administering the activities of the WTC Health Program Steering Committees established under section 300mm–1(b) [1] of this title; and
(vi)
for meeting periodically with the corresponding Clinical Centers of Excellence to obtain input on the analysis and reporting of data collected under clause (i) and on the development of monitoring, initial health evaluation, and treatment protocols under clause (ii).
(B) Medical provider selection
The medical providers under subparagraph (A)(iv) shall be selected by the WTC Program Administrator on the basis of their experience treating or diagnosing the health conditions included in the list of WTC-related health conditions.
(C) Clinical discussions
In carrying out subparagraph (A)(ii), a Data Center shall engage in clinical discussions across the WTC Program to guide treatment approaches for individuals with a WTC-related health condition.
(D) Transparency of data
A contract entered into under this subsection with a Data Center shall require the Data Center to make any data collected and reported to such Center under subsection (b)(1)(B)(iii) available to health researchers and others as provided in the CDC/ATSDR Policy on Releasing and Sharing Data.