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42 U.S. Code § 280e. National program of cancer registries
(a) In general
(1) Statewide cancer registriesThe Secretary, acting through the Director of the Centers for Disease Control, may make grants to States, or may make grants or enter into contracts with academic or nonprofit organizations designated by the State to operate the State’s cancer registry in lieu of making a grant directly to the State, to support the operation of population-based, statewide registries to collect, for each condition specified in paragraph (2)(A), data concerning—
(A)
demographic information about each case of cancer;
(B)
information on the industrial or occupational history of the individuals with the cancers, to the extent such information is available from the same record;
(C)
administrative information, including date of diagnosis and source of information;
(D)
pathological data characterizing the cancer, including the cancer site, stage of disease (pursuant to Staging Guide), incidence, and type of treatment; and
(E)
other elements determined appropriate by the Secretary.
(2) Cancer; benign brain-related tumors
(A) In generalFor purposes of paragraph (1), the conditions referred to in this paragraph are the following:
(i)
Each form of in-situ and invasive cancer (with the exception of basal cell and squamous cell carcinoma of the skin), including malignant brain-related tumors.
(ii)
Benign brain-related tumors.
(B) Brain-related tumorFor purposes of subparagraph (A):
(i) The term “brain-related tumor” means a listed primary tumor (whether malignant or benign) occurring in any of the following sites:
(I)
The brain, meninges, spinal cord, cauda equina, a cranial nerve or nerves, or any other part of the central nervous system.
(II)
The pituitary gland, pineal gland, or craniopharyngeal duct.
(ii)
The term “listed”, with respect to a primary tumor, means a primary tumor that is listed in the International Classification of Diseases for Oncology (commonly referred to as the ICD–O).
(iii)
The term “International Classification of Diseases for Oncology” means a classification system that includes topography (site) information and histology (cell type information) developed by the World Health Organization, in collaboration with international centers, to promote international comparability in the collection, classification, processing, and presentation of cancer statistics. The ICD–O system is a supplement to the International Statistical Classification of Diseases and Related Health Problems (commonly known as the ICD) and is the standard coding system used by cancer registries worldwide. Such term includes any modification made to such system for purposes of the United States. Such term further includes any published classification system that is internationally recognized as a successor to the classification system referred to in the first sentence of this clause.
(C) Statewide cancer registry
References in this section to cancer registries shall be considered to be references to registries described in this subsection.