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Families Detail Years of Anguish, Pain As They Plead for Changes to Privacy Rule

“You probably have no idea how horrible it is to go weeks & weeks with the realization that there are only 3 possible scenarios for your loved one. Every time my son’s been hospitalized I knew he would either end up in Jail, Dead or in the Hospital. Please, please, please revise the HIPPA laws to allow family members to be part of the decision making, the conversations & treatment plans!!!”[1]

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